Still Alive...

Thursday, May 1st, 2008 07:59 am
auntbijou: (Default)
I haven't been around much lately, save for the odd comment here and there. It's been a...hmmmm... how do I put this? Well, Auntie has been rather like Alice's White Queen lately, running as fast as she can just to stay in one place. It seems like I've been running to stay in one place since Saturday!
What I've been up to... )
auntbijou: (Default)
It has been one of those days today. It's actually beautiful outside, and I've been out since about 9 am, because it's still soccer season, and Mr. Impossible's game was at 10. His team won, by the way, 5-0, and doesn't it feel weird to yell, "Go Slytherins! Yay, Slytherins, you can do it!!"

Well, they are the green team, after all.

The Asthma Monster reared its pointy little head today and wouldn't go away, no matter how I tried shooing it. I spent my time huddled in my chair, rather than prowling the sidelines with my camera, as I usually do. I cheered, though, as much as possible.

The Impertinent One's game was at 1, and they didn't play like they usually do. Everyone was sort of... off. In an odd bit of synchronicity, they LOST 5-0. I tried to walk the sidelines, taking shots with my camera, but... after a while, I ended up in my chair.

Funny side note, though. Mrs. Insane's son missed the last game, and hasn't been to practice in all this time, about three weeks or so. Today, he showed up for the game, so we actually had a substitute (yes, our kids have been playing games with no subs, so they play the entire game with no breaks. We're talking 30 minute halves, people). It showed that he hadn't been to practice. *sigh*

I looked around for his parents, but didn't see them until near the end of the game, when Mrs. Insane came up and said, "Isn't it time for this game to be over already? It's after 2, you know, this half has been extremely long, isn't it going into overtime?"

I blinked and said, "Each half is 30 minutes long."

"This game started at 1, and it's 2:20 already! Does the referee need a watch? I could lend him mine..."

"The game started at 1:15. The first half ended at 1:45, and there was a ten minute break for water and snacks. The second half started at 1:55. It's 2:21, there's four more minutes in this half," I said calmly.

"Well, I think I should speak to the coach or the coach's wife about this, because this game has gone on far too long! It was supposed to start at one, and I'm sure I don't know why it started so late!"

I cleared my throat. "And what time did y'all get here?"

"One twenty!" said a chorus of parents (including some from the other team) before she could so much as open her mouth.

I smiled into her shocked face. "Which is why you don't know why the game started so late."

It was at that moment that she realized who I was, and beat a hasty retreat.

Turns out she, her husband, and their other children spent almost the entire game sitting in their car. Because they didn't want to expose their kids to my unstable, psychotic husband. Yeah, that's what she told Mrs. Coach. Who said, "You should be really careful throwing those terms around. THO is too nice to do it, but I think even his patience and tolerance can be pushed too far, and you might find yourselves being sued for libel or defamation of character or something."

I enjoyed the woman's horrified expression far too much to point out that we really wouldn't have much of a case. And it would be a complete waste of time. She scuttled back to the car with her son, shouting at him when he tried to get THO to buy a raffle ticket for his church.

That's the truly sad thing in all of this. Her son genuinely likes THO. He thinks THO is really cool, and has appreciated THO's taking the time to explain things to him. THO said if he had had the cash on him, he might have bought a raffle ticket just to tick Mrs. Insane off. When we got back to our car, we saw the Insanes had parked nearby, and THO watched them thoughtfully as he loaded our chairs in the back of the minivan. "Wasn't he supposed to... do something about me?" he said, jerking his chin toward Mr. Insane.

"Oh, that's right!" We watched them back frantically out of their parking space and drive off in a hurry. "I guess what he has decided to do is flee."

And now I am in bed. Yes, a very interesting day. We shall just see how it goes from here.
auntbijou: (Default)
Okay, so...

The GOOD news is... the doctor doesn't think I have a broken rib.

*pauses for effect*

The BAD news is... evidently, thanks to our city road crews, I've been coughing so hard that I might as WELL have broken one. So I am on six days worth of steroids, muscle relaxants, and bed rest.

You see, the city is resurfacing the streets in our neighborhood. Actually, it's more like all the streets in our section of town, because they're also doing it over by the Impossible Son's school. This entails not only scraping the street down and lots of digging, but at least six passes, every hour, by a street sweeper. Which means a LOT of dust and particulates in the air. Nope, no fun at all!

So, I've been coughing my lungs up, literally. My asthma doesn't manifest itself as wheezing, no, my schtick is COUGHING, and apparently, I've been coughing hard enough to do some damage inside me. Yay.

This morning, I woke up feeling not quite myself. I get very tired when the Asthma Monster acts up, so I figured, okay, I'll be using the damned inhaler today. Then, when I tried to get up to start my usual morning routine...well... let's just say I was in a LOT of pain. Poor THO! He hates going in late, but driving was out of the question for me, so... he had to make lunches and get the kids off to school. I am now on six days of steroids to get my asthma to back the hell off, and no, Auntie is NOT happy about this. And a muscle relaxant for my damaged muscles. Yay.

Did I say I liked roller coasters? I would like to get off this one very much, please. This is getting really old, really fast.
auntbijou: (Default)

Okay, I can't leave y'all hanging and thinking my asthma has been nothing but a misery to me.  I mean, I've had funny moments, too.  Like during the first year after I was diagnosed, when I was so allergic to EVERYTHING that I had to wear a face mask everytime I wanted to go outside.  I HATED that, but... sometimes, there were funny moments.  Like when my nephew, who was 11 at the time, snatched my mask away from me and hid in his room with it for ten minutes, then came back with it and handed it to me, a big grin on his face.  I fell apart laughing when I looked at it, because he'd turned me into Optimus Prime.  Of course, the marker fumes pretty much made me pass out, but I appreciated his gesture.  After that, he used crayons, because he hated how... WHITE those things were, and oh, wasn't he embarrassed to be seen with me when I had to wear one!  Heck, I didn't want to be seen with me when I had to wear one!


Or the same stupid joke the Husbandly One would tell me when things got really bad.  As long as I could laugh about it, I could bear it, so he would get in front of me and make me stare into his eyes, and he would say, "Okay, so there's this blind guy, and he walks into a department store with his guide dog."

"Oh, no," I would say, trying to groan, but unable to because...well... I couldn't breathe, right?  Totally captive audience.

"And after a minute, he picks his dog up and starts whirling it over his head at the end of the leash..."

"No, please stop!" I would gasp, but those blue eyes would just twinkle, and I knew he was going to do it again.

"The clerks are all horrified and they run up, shouting, "sir, sir, what are you doing?"..."

"Augh... stop..." I would protest weakly.

"And he'd say... don't mind me, I'm just looking around..."

And I'd fall apart laughing and coughing my lungs up, but feeling much better.  He got the idea after my best friend told him about how her sister's boyfriend would tell her the same damn joke and she would laugh every single time.  Just like I did.

And yeah, he told that same joke to me when I was in labor, but... it didn't work.  I had already told the doctor that if he said, "push it out, push it out, WAAAAAY out," she was to have him escorted firmly from the room and confined elsewhere.  When he told me that joke, I said, "If he tells that joke again, give him a paper cut and pour lemon juice on it."

She laughed.

However, I have to say the funniest thing that ever happened to me, because of my asthma, wasn't funny at the time.  It was embarrassing.  But later, when I thought about it, I realized it was extremely funny.  

I had just started a new inhaled medication called "Azmacort."  I don't know if they still make it.  It was an inhaled steroid, and I didn't take it long, because it made my throat swell up.  This is not good if your goal is to be able to actually breathe.  Anyways, it came in this white foldy-out sort of combination of inhaler and spacer, which is like this cylinder that holds the medicine until you're ready to breathe it in.  It looked very... odd, complicated, and I used to call it my "Rube Goldberg inhaler."  And the thing about this particular medication was, I had to take it at specifically timed intervals.  Like... every four and a half hours.  I HATED it.  I was still new to having asthma, and hated using my inhalers in front of people, because while most people had the usual politely looking away reaction, there were others who would stare and ask extremely bizarre questions.  Like how many shots could I take before I passed out? Does it taste good?  If I kissed you, could I taste it, and would I get buzzed, too?  Can I have a hit?  Why are you using that, you're not wheezing?  and on and on and on.  

So, one afternoon, I had taken my mother for an eye appointment.  And while we were sitting in the waiting room, waiting for her eyes to dilate, my watch beeped, and I knew it was time for me to use my inhaler.  I looked around the crowded waiting room and told my mother that I was going to use it in the privacy of the women's restroom.  She rolled her eyes, but patted my hand and told me to do what I needed to do.  So, I trotted off to the rest room and found it empty.  I thought.  I had unfolded the damn white monster and was blowing out a breath, preparing to use it, when a stall door opened and a woman came out with her little daughter clutching her hand.  She stopped and stared at me as I inhaled the medicine (because I was committed and had to just do it at that point), and I couldn't speak to her, because I was supposed to hold my breath for 30 seconds after inhaling and wait.  She went white, clapped her hand over her child's eyes, and rushed out.  I  was so relieved, and checked my watch to wait the three minutes before I could take the second dose.  Just as I was inhaling for the second time, the door burst open and the woman was back, sans child, but she wasn't alone.  She had a MAN with her!  A big BURLY man in a uniform.  A security guard.  As I stood there, desperately holding my breath and wondering just what the hell was going on, she pointed her finger at me and said, "There!  See!  She's doing it right out where you can see it!  She's SMOKING CRACK!!"

My mouth fell open, and I started coughing, because I WANTED to laugh, but I couldn't, because I couldn't BREATHE.  

The security guard frowned and looked at me, looked at my inhaler, and looked back at the woman.  "She's doing WHAT??" he said with that I-can't-believe-you-so-white-bread look only inner city kids (like me) get when we're confronted with such blatant... er... stupidity??

"She's SMOKING CRACK!!" the woman said semi-hysterically.  "She did it RIGHT IN FRONT OF MY DAUGHTER!!"

"Lady," he said patiently, taking my inhaler and pulling the little canister out of it.  "This... is an inhaler."

"Yes, yes, because she's INHALING CRACK!!"

"No, she's inhaling asthma medicine!  She's an asthmatic not a crack addict!!"  He shook his head and handed my inhaler and medicine canister back to me and turned back to her.  I won't bother to include what he said here, but it was to the point and rude and made her huff and flounce away indignantly with a threat to tell his supervisor, and he said, "yeah, you do that."

Meanwhile, I noticed we had acquired rather a large audience.  Apparently, she had gone screaming down the hall about the crack addict in the women's restroom on her way to security or whatever, and when I came out, well...it was hugely embarrassing.  However, they weren't looking at me, necessarily, they were peering over me to see if they could see the crack addict who was obviously still in the restroom.  Apparently, I was too well dressed for their idea of a crack addict.  Shows what they knew, doesn't it?

It took a while before I was able to see the humor in that, but now, I laugh heartily when I think about it.  I guess I should mention that this happened in 1990.  And she was very much an upper class white suburban mom.  Apparently, to her, all college students (which I was, and even worse, I was an ART student, and had multiple earrings and the whole shebang) were potential drug addicts.  

I've had other adventures where my asthma is concerned, but I think that's probably one of the funniest.  Even funnier than the time I was on a nebulizer and my best friend started laughing heartily and said, "That mask makes you look like a dragon with smoke curling out of your nostrils."

Fun times, I'm telling you!

auntbijou: (Default)
... aside from the whole, not being able to breathe thing, that is...

I hate that it limits me, sometimes.  And it NEVER happens at a convenient moment.  Never.  So, there are many times I find myself having to postpone walks, or shopping, or any myriad of things I want to do, because I don't have the energy to do anything.  Period.

I hate that the medications sometimes make me feel worse than the actual symptoms.  I have a rescue inhaler that is basically aerolized albuterol, which is like... adrenaline.  This is supposed to open up your airways and make it easier to breathe.  And yeah, I guess it does do that.  Only problem is, it also sometimes makes me faint.  Literally.  I use the inhaler and the next thing I know, I'm on the floor looking up at everybody.  Yay, isn't that fun?  No.  And I shake.  I shake like you wouldn't believe.  Like, right now, my heart rate is 148, and I'm shaking so hard I can barely type.  Notice that I am typing, though.  Because I'm taking my time.  So... I'm shaky, my heart is racing, and I can't lay down, because if I do, I can't breathe... it's a vicious little circle.

I hate that there are a lot of places I can't go.  I love live music.  And I live near the Live Music Capital of the World (according to the sign just outside of Austin).  But I can't go.  Why?  Because, where there is live music, there is cigarette smoke, and where there is cigarette smoke, I can't go.  Well... unless I WANT to end up in the emergency room.  Which I don't, but the reason why will come up in a minute.  I couldn't visit my in-laws because they are heavy chain smokers, and I would either end up sitting outside in the heat, or the cold, or sitting inside, heavily medicated, and STILL end up going to the emergency room.  There's a couple of barbecue places in town I can't go, because their pits are in the building, and the smoke fills the restaurant, and while it smells great, I end up in bed for the rest of the day.  Smoke of any kind is an Achille's Heel for me.  So is mold, and ragweed pollen.

I hate that when I go to an emergency room for my asthma, I have a less than 20 percent chance of getting a doctor who knows anything about asthma, and that I might die because there are so many doctors who still think asthma is all in one's head.  I had a doctor tell me I was just hyperventilating, and prescribed a tranquilizer to calm me down.  I was most fortunate that MY doctor showed up, and after getting me treated PROPERLY, ripped him a new hole as she "explained" to him just what kind of idiot he was, and didn't he know that hyperventilation was a HALLMARK of an asthma attack?  DUH!!

I hate that there are days that I can't play with my kids, or work in my garden, or bake cookies, because my asthma is acting up.  Doesn't happen as often as it once did, but when it does, it knocks me flat.  

I hate one has to walk such a very fine line when taking the medications that treat asthma, and that half the time, your doctor doesn't know how to take them properly.  My rescue inhaler?  I was using that for a year before I found out that I was supposed to use it once, wait five minutes for the medication to start opening my airways, then use it again, so the medication could go even deeper.  When I was on Advair, I had to find out by doing research ON MY OWN to not use it on days when my chest was tight, because that would actually MAKE MY SYMPTOMS WORSE.  Yay.  When I asked my doctor about it later, he said, "Oh, that's right, I just got a handout on that last week."  To be fair, though, when he does get new information about my meds, he calls me to discuss it right away.  

I hate that most doctors reach for steroids to treat asthma right away, rather than trying something less... extreme, and that isn't really recognized as a valid treatment, except for really advanced cases.  

I'm just feeling really grumbly today, because the Asthma Monster is giving me a hard time.  And I can't do the things I want to with my kids.  And I'm shaking so hard... *sigh*

You know, I keep ordering new lungs, and I keep getting letters back saying they're out of stock... 

The Score

Friday, June 8th, 2007 08:17 pm
auntbijou: (Default)
Asthma Monster:  3
Auntie: 0

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